Muscle disease sucks! There are many varieties; none have cures and many claim lives. ALS is the worst in my opinion but it doesn’t mean the others are less significant…especially if you are sporting one. I am. It’s robbed me of skiing (water and snow), road cycling, mountain biking, sailing, hiking, rock climbing, hunting, tournament fishing, trap, skeet, sporting clays, pistol silhouette shooting, enduro trail riding, scuba diving, home improvement projects, simply eating with my dominant hand, walking more than a couple hundred feet. Yup, it sucks. However, I’m grateful it’s not ALS as that has more than inconvenience at stake.
The ALS bucket challenge! Awareness is the first step toward a cure. Cures take institutional research, money and ultimately a “big pharma” willing to risk the long and expensive process of clinical trials and FDA approval. Progress is being made but the road is long and full of bumps… or hyacinth, depending on your perspective.
If you live under a rock and haven’t seen it, once called out you either dump a bucket of ice water on your head or donate $100 to MDA for the ALS effort. Both Ocean Goer and Lake PAL have done it. Post your vids! Spread the word. Donate.
click here for details...www.mda.org